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Frontotemporal Dementia (FTD) is one of the less talked about ‘Dementias’, but in my opinion, is becoming more common than many report. FTD presents many unique challenges for family members caring for a loved one with this form of dementia. By far, more behavioral issues are unfortunately common and a daily occurrence. Dealing with explosive behavior including anger, harsh language, accusations and many times, violent outbursts that include hitting, biting, kicking and using everyday household items as weapons is what families often find themselves dealing with. I have offered articles and videos below that discuss many aspects of FTD. I will comment on many of them, especially when they  are written by Medical Professionals to help you understand the article.

I Cannot Fix Victoria | Coping With Frontotemporal Dementia

http://copingwithfrontotemporaldementia.com Sat, 25 Jan 2014 04:06:37 GMT

I can be the smartest, and most gifted Neurologist in the world and there is nothing I can do to fix Frontotemporal dementia. What can I do? I can serve my wife. I can cleanse Victoria, dress, feed, shelter, protect, and provide 

I have included this website because this is a Neurologist that is caring for his wife that has FTD. This website has an incredible amount of information about the behaviors and symptoms that Victoria is experiencing and will serve to be a wealth of information to anyone dealing with a family member and FTD. I encourage everyone to read this information and bookmark this site so you can visit it frequently.

 

Fronto-Temporal Dementia – staje

http://www.staje.org Thu, 16 Jan 2014 08:27:57 GMT

Fronto-Temporal Dementia (FTD) is a form of dementia that is far less common than Alzheimers, but is equally devastating and swift in its effects. Also known as Pick’s disease, frontotemporal dementia accounts for 10-15% of 

This is a good site that offers a definition and general information about FTD.

 

The Genetics of Frontotemporal Dementia – DementiaToday

http://www.dementiatoday.com Fri, 27 Dec 2013 18:57:40 GMT

Dear Readers,. I recently received an email from Paula who expressed concern about the hereditary risk of frontotemporal dementia. Like Paula, and the many people who visit my website, I too, had a parent who died from 

This is a great resource for families. It addresses the issue of hereditary potential is you have a relative with FTD. They also offer a great resource you can download called Understanding the Genetics of FTD: A guide for patients and their families. I recommend you visit this site, read this article and download that guide.

 

Research Brief: A Literature Review of Frontotemporal Dementia

http://ifp.nyu.edu Sat, 25 Jan 2014 14:05:19 GMT

This entry was posted in Journal Article Abstracts and tagged and-publishing, driving-issues, english, following, ftd, google-scholar, groups-specific, publishing, research, research-on-ftd, specific, stop-at-red. Bookmark the 

This article in essence deals with FTD and driving. This is a brief overview of the findings and shows that people with FTD had more problems with specific driving issues related to antisocial behaviors common among people with FTD (eg, hit and run crashes, failure to stop at red lights, speeding infractions, and failure to recognize pedestrians at intersections). I agree that more research is needed but my advice to family members is get your loved one with FTD out from behind the wheel of the car. This is a timebomb waiting to go off and your legal liability is high when you allow a loved one with known FTD to drive.

 

Frontotemporal dementia | Jurmaine Health

http://jurmainehealth.com.au Fri, 01 Nov 2013 23:56:39 GMT

Frontotemporal dementia is can be a serious disease to affect the human mind, a slow and progressive degeneration of the frontal lobe of our brains.

Good general discussion about FTD.

 

Sleep Disturbances in Frontotemporal Dementia – DementiaToday

http://www.dementiatoday.com Sat, 09 Nov 2013 20:25:58 GMT

J Alzheimers Dis. 2014 Jan 1;38(1):85-91. doi: 10.3233/JAD-122014. Sleep in Frontotemporal Dementia is Equally or Possibly More Disrupted, and at an Earlier Stage, When Compared to Sleep in Alzheimer’s Disease.

Overall, this discusses a study done to compare FTD sleep disturbances against Alzheimer’s sleep disturbances. Basically, the study shows that sleep disturbances are similar in FTD and Alzh, but the sleep disturbances occur earlier in FTD because this form of dementia strikes people earlier in age.

 

A lesser-known dementia that steals personality | CLBB

http://clbb.mgh.harvard.edu Fri, 10 Jan 2014 21:39:16 GMT

While Alzheimer’s usually affects older people, and is detected as a person begins to lose memory, frontotemporal dementia causes people to lose their personalities first, and usually hits in the prime of their lives — the 30s, 

Very interesting study that defines the areas in the brain that FTD affects as the “perception network” which they describe as the areas in the brain involved in motivating a person to connect with others and generating rewarding feelings during social interactions; and the “affiliation network” which they describe as the areas in the brain involved in detecting and avoiding untrustworthy or threatening individuals. So, depending on where the most damage exists in the brain of your family member with FTD, when the perception network is most damaged, your loved one will have difficulty responding to social cues, facial expressions and eye gaze. They will have difficulty understanding gestures and body language and often will respond to it with indifference or avoidance. They will lose the ability to show compassion, empathy, wittiness and many other traits that have always been unique to them. When the damage is greatest to the aversion network, your family member with FTD will trust strangers and give them any information they ask for. Your family member will be suseptible to scams and ID theft, to name a few.

 

The younger face of dementia: Ottawa man shares wife’s battle with the disease – CTV News

http://news.google.com Tue, 07 Jan 2014 13:14:55 GMT

The younger face of dementia: Ottawa man shares wife’s battle with the diseaseCTV NewsA year ago, the mother of three was diagnosed with frontotemporal dementia, or FTD, a devastating brain disorder with no known cure. Dineen’s case was so severe tha …

This is a MUST READ for anyone with FTD or a family member of a person with FTD. This article talks about the potential for missing the diagnosis especially in women, instead being written off to midlife crisis. It is sad to read about a vibrant 40 y/o woman that has such a rapid progression of her disease, but what an important story to read about and understand how to advocate for family members and never take “it’s just a midlife crisis” and go to another Physician for a proper diagnosis.

 

Senior Consult: Behavior may be onset of dementia – Florida Today

http://news.google.com Thu, 16 Jan 2014 18:10:10 GMT

Senior Consult: Behavior may be onset of dementia Florida Today And that something was FTD frontotemporal dementia. In most dementias, patients present with memory gaps, loss of ability to learn and plan, and difficulty performing complex tasks. That …

Interesting article about a Physician that began showing up to work in his pajamas and how his office manager took steps to help him. He was diagnosed with FTD.

 

Caregiver of spouse suffering from dementia advocates for support – ksl.com

http://news.google.com Tue, 28 Jan 2014 16:20:20 GMT

ksl.comCaregiver of spouse suffering from dementia advocates for supportksl.comThat resulted in damage to the frontal lobe of his brain, or frontotemporal dementia. “My dad acts like a 2-year-old, and sometimes it’s funny,” 9-year-old Braxton Gordon …

Very powerful story about a 36 y/o man with FTD and the struggles his wife goes through trying to get help. Read this article and let your voice be heard about what State and Federal Agencies should be doing to help families caring for a loved one with dementia. Remember, your voice and your vote matter, speak out now.

 

A ‘thief’ stole their future – Winnipeg Free Press

http://news.google.com Thu, 09 Jan 2014 09:34:39 GMT

Winnipeg Free PressA ‘thief’ stole their futureWinnipeg Free PressAfter 16 years together, the title of “caregiver” has moved ahead of “partner” for Cathy Hurd. Hurd’s husband, Tom Carter, 58, suffers from frontotemporal dementia. It’s a disease that …

Another story about the rapid progression of FTD and the lives affected.

 

Speaking a second language may delay different dementias – YottaFire

http://news.google.com Tue, 28 Jan 2014 06:44:32 GMT

Speaking a second language may delay different dementiasYottaFirePeople who spoke two languages had a later onset of Alzheimer’s disease, frontotemporal dementia and vascular dementia than people who spoke only one language. The difference was also f …

Very interesting! Now, I need to learn a second language!

 

Denise’s Decision | Living with her husband who suffers from Frontotemporal dementia

Denise Thomas talks about life with her husband of 35 years, Randy, who suffers from a rare form of dementia called Frontotemporal dementia. (December 15, 20…

 

How FTD Affects Families

http://www.kcet.org/shows/yourturntocare/do/how-ftd-affects-families.html As seniors age, there is always a concern for the onset of dementia, in any form. B…

 

Frontotemporal dementia and the social brain latimes com

 

I recommend you bookmark your favorite websites so you can refer back to them frequently.

About 

I am a retired Primary Care Physician that has a passion for teaching people about the various forms of dementia and how to care for your loved one suffering with dementia. I spent several years of my career caring for residents at a VA facility living on the Alzheimer's Unit. I produced "The Dementia Caregiver Video Course" that takes you from the workup for dementia, through the various challenges you will face in caring for someone with dementia, to end of life issues.

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